Hudson Valley Parent

HVP November 2019

Issue link: http://hvparent.uberflip.com/i/1178892

Contents of this Issue

Navigation

Page 15 of 35

16 Hudson Valley Parent n November 2019 back, EDS had not altered my life much. I now know, however, that no two individuals with EDS have the same symptoms. By REBECCA MILLS A s a woman with a lifelong goal of becoming a mother, deciding to have a child was the easiest decision that I have ever had to make. Prior to trying to conceive, I met with a team of specialists since I knew my pregnancy would be considered high-risk. I have a rare condition, Ehlers-Danlos Syndrome (EDS). It's a genetic, connective tissue disorder that causes the hy- permobility of joints (which often results in dislocations), chronic pain, and sensitive skin that bruises easily and is slow to heal. Although my specialists' repeat- edly told me I could pass EDS to the child I wanted to conceive, it did not concern me. My EDS was mild and I had lived a completely normal life for twenty-seven years. The only limit I faced as a result of EDS was having to quit cheerleading at my pediatrician's advice. At the time I was devastated, but when I looked Precarious pregnancy I became pregnant and during that time had frequent obstetri- cian-gynecologist and Maternal Fetal Medicine appointments. Since it was Mom's intuition hits the mark Pregnancy, birth and diagnosis of a daughter with special needs Quinn Mills inherited Ehlers-Danlos Syndrome (EDS) from her mother. The rare genetic, con- nective tissue disorder causes the hypermobility of joints, chronic pain, and skin sensitivity.

Articles in this issue

Links on this page

Archives of this issue

view archives of Hudson Valley Parent - HVP November 2019