Hudson Valley Parent

HVP November 2019

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16 Hudson Valley Parent n November 2019 back, EDS had not altered my life much. I now know, however, that no two individuals with EDS have the same symptoms. By REBECCA MILLS A s a woman with a lifelong goal of becoming a mother, deciding to have a child was the easiest decision that I have ever had to make. Prior to trying to conceive, I met with a team of specialists since I knew my pregnancy would be considered high-risk. I have a rare condition, Ehlers-Danlos Syndrome (EDS). It's a genetic, connective tissue disorder that causes the hy- permobility of joints (which often results in dislocations), chronic pain, and sensitive skin that bruises easily and is slow to heal. Although my specialists' repeat- edly told me I could pass EDS to the child I wanted to conceive, it did not concern me. My EDS was mild and I had lived a completely normal life for twenty-seven years. The only limit I faced as a result of EDS was having to quit cheerleading at my pediatrician's advice. At the time I was devastated, but when I looked Precarious pregnancy I became pregnant and during that time had frequent obstetri- cian-gynecologist and Maternal Fetal Medicine appointments. Since it was Mom's intuition hits the mark Pregnancy, birth and diagnosis of a daughter with special needs Quinn Mills inherited Ehlers-Danlos Syndrome (EDS) from her mother. The rare genetic, con- nective tissue disorder causes the hypermobility of joints, chronic pain, and skin sensitivity.

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